Showing posts with label Love. Show all posts
Showing posts with label Love. Show all posts

Saturday, 25 September 2021

Rare disease: letting go of guidelines and still wearing a mask

So today in the Netherlands a lot of the guidelines about covid have been let go, like the social distance one. I must say I find it a bit scary but I mean I get it, that also mainly has to do with my situation, my health, my family’s health. But that is why especially on a day like today I wanted to share something. Some of you already know me, a lot of you probably won’t. 

So hi there, I am Poppy, I am chronically ill, I am fully vaccinated, I still keep my distance and I still wear a mask.  when I do need to come in contact with people. Just bear with me a second on why I am writing this and why I think it is important. I have been thinking about writing this post for the past couple of two weeks. I didn’t want to write it at first because I thought it might seem annoyed or something. But I have been thinking and I think it could help some people see some things from a different perspective. 


So this was the case: as some of you may know I am chronically ill with a rare disease. Therefore I have been very careful these past 1,5 years. I have been living a very isolated life, which I am no stranger to but you can read that in another blog post of mine. Even before all this I mostly had my groceries delivered at home. Ever since the pandemic hit the globe I have been careful, no close contact, have been using a mask and asking the deliverance to place the groceries by the door etcetera. I am always a bit down the hall, with a mask and I have the door open so I can say hello. Mostly they ask where to put the groceries since most companies didn’t let their employees deliver inside the house anymore due to the pandemic. Or I sometimes ask them to just leave the groceries on the doorstep or just over it. And if someone does want to place the groceries in the house which I get is just a nice gesture or something that is so wired in their system, I just ask them if they would place them on the doorstep or just over the doorstep because that’s just fine. And mostly their response is a bit of relief like they don’t have to carry all those groceries inside or like are you sure and that it is no problem, which still I get is a nice thing. But sometimes, and in these past years with the pandemic, it just only happens a few times, they are just too quick and already inside the house so I have to ask them to please keep their distance and I say that I am fine with it if they put the groceries over the doorstep. And again most of their reactions are like are you sure it is fine, which is just nice. But recently it was a bit different, still, the delivery person was super nice and just helpful and my guess is it is just a bit different now that most of us are vaccinated and we already knew about the upcoming changes to the policies and guidelines. So this time the delivery person was too quick, already in the house, so I backed up a bit and asked them to place the groceries just there over the doorstep. Since he took another step I said I liked it if we kept our distances. He was kind and laughed it off a bit but then he said a bit condescending and laughing well then I know for sure you are not vaccinated… Like uhm Oke… so I told him with a bit of an annoyed tone well yes I am fully vaccinated, which he again laughed a bit too, and I replied that I am but I still need to be careful because I am very sick. To which he was like oh oh like so. And seriously I get that some might be confused or maybe even like you don’t have the covid or anything right?! And I am fine I someone would just ask. I just say it like it is like that I am fully vaccinated but I am chronically Ill so I have to be extra careful. 


The reason I made this post is that even after today a day where most guidelines have ended I still will be social distancing, still be wearing a mask if I feel I need to, in a public place, at the doctor's, getting my groceries, opening my front door, etc. I really hoped that at the beginning of this pandemic people would start to see things more from a different perspective and have more understanding for people who are (chronically ill) or have disabilities. And that is why I wrote this post to let people see a different side. I do hope people will start to think more inclusive because if people who now feel like an outsider because they have to show a corona app to go to the theater, out to dinner, have lunch with friends. I ask them to try see from a different perspective because we have always been the outsiders even long before this global pandemic hit the globe things weren't inclusive for people with (chronic) illnesses and disabilities. Just imagine how they felt these past years. Loads of their worlds have become so small you can't even imagine and now because some feel they are left ut because they need a pass or an app or such to go places, they are creating a bigger gap again to those who have already been left out.


I could make an even larger post but I just wanted to give my experience as an example as to why some would still wear a mask or still keep their distance and why this would be greatly appreciated if that where to be respected. 



Sunday, 7 February 2021

Poppy Makes... Valentines day printable cards

 
It has been quite some time since I posted something, uploaded a video, wrote a blog, made a printable etc. Let's just say, this pandemic and self-isolation has had a bigger effect on me than I could have ever imagined at the beginning of this pandemic. Even though I am no stranger to isolation it is though. But that is not what I wanted to talk about maybe I'll post a new blog soon about how it has been going. I figured I would try to pick up a little where I left of because crafting always makes me happy, so... to start off I made some new Valentines day printables. 

They are of course as always free to download in PDF format. All you need to do is click here to get your own copy. Don't forget to check out below there you'll find some of my previous printables and Valentines day inspired video tutorial.

Have fun!

x Poppy

 

 
 


Looking for some more Valentine's Day inspiration? Check out these printables and video's down below
 



 


 


 

Friendship bracelets are always a good idea and with this heart shape pattern you just can't go wrong. Just pick your loves favourite colour and it will be for sure a hit.

 
Nothing says I love you more than home-made sweets. Although I intentionally made this video for Mother's day why not make some delicious personalized sweets for your love.

Roses are of course the number one flower when you think of Valentine's day. But in this video I will show you how to make a rose that will last your whole life together.

 
For those who just love breakfast in bed: this is such a cute way to serve up breakfast. Or serve them as desert, as snack who cares, it is your Valentine's day!

Valentine + roses + cupcake = a super delicious idea. In this video I show you a few techniques on how you can make adorable rose cupcake toppers to impress your love.

 
Learn how to make a alpha bracelet and with the printable you can even make your own. With your or your loves name.
 

Saturday, 29 February 2020

Happy Rare Disease Day!

As the title may already have given it away; today is international rare disease day. That is no coincidence of course with it today being February 29. And because of it, I wanted to help raise awareness of why it is important to have a day like today which asks for awareness of rare diseases and conditions plus also to share a little of my story and why this issue hits close to home.

Well, I have a rare disease and have been struggling with it mentally and physically since I have gotten sick 12 years ago, at age 20. In my case, only 1 in 1.000.000 people are affected by the disease and because mine is familial it's even rarer, even fewer people have what I have. I never like to talk about me being sick not even to my close friends and family. And that is actually the reason I started Poppy Makes.

I wanted a place where no one would see me as the sick girl and a place where I could feel more like the "old me". And because it has always been about what I make or bake, I never felt the need to share that part of my life. But in time I have learned that it is so important to speak about it to your loved ones. So it becomes the new normal, I mean define normal but you get where I'm going with this, normal for you so you won't feel the odd one out. And although I think it will always be a process and to learn to deal with all that comes along, I am at a point in life where I would like to share more about me in the hope that others might not feel so alone.

But what is a rare disease and how is a rare disease or condition defined? Although, I am not the person to come up with statistics because statistics don’t say anything about the individual. But that being said and to give you more of an idea. By European standards, a disease or condition is found rare when fewer than 1 in 2.000 people are affected. In the United States, it is considered rare when a disease or condition affects fewer than 200.000 people or 1 in 1.500. In Japan, a disease or condition is found rare when fewer than 50.000 people or 1 in 2.500 are affected. In medical literature it various how they define when a disease is rare from 1 in 1.000 to 1 in 200.000. But just because a disease is rare doesn't mean you may not know someone with a rare disease because there are about 5000-7000 rare diseases known to mankind today. And the estimation is there are 300.000.000 people affected by a rare disease or condition. Because diseases are rare it is also more difficult to research and to develop the right medicine and/or treatment just because there is a lack of market large enough to gain support and resources for discovering the right medicine and/or treatment.

So to give you an example and idea of a rare disease; you may have heard of ALS which got more publicity over the last few years. Just to be clear I myself do not have ALS I only took this as an example of what it means for a rare disease to get more awareness. So as I said you may have heard the disease ALS, it even went viral in the summer of 2014 because of the Ice Bucket Challenge. It has been estimated that there are about 16.000 ALS patients in America at any given time, although that of course fluctuates. ALS is one of the many rare diseases that exist and probably most of the rest of the rare diseases or conditions you and I have never heard of. That is why it is important to have days like these and get more publicity about rare diseases and conditions in general. Because diseases and conditions are rare so is the information, education, support, treatment, medication, understanding. And although maybe not everyone who participated in the Ice Bucket Challenge did make a donation the estimate says every 1 in 6 did. And because of that a $115.000.000 were raised in 2014 and since The ALS Association has been able to commit $131.000.000 towards their mission, including over $89.000.000 specific to global research collaborations. So my point being is it; that it is so important to raise awareness for rare diseases and/or conditions because although it may not affect a lot of people, many are affected by it. And more awareness does make a difference.

So you may ask yourself, I could have just googled most of it, right?! Uhm yes and yes I did as well, duh. But you may not have googled it yourself if you weren't told that today is international rare disease day and I thought this would be the perfect opportunity to tell you a little more about myself. So I guess I just wanted to share this a bit with you and if you want to see what you can do near your hometown there are all kinds of events worldwide which you can find on raredisease.org or maybe you know someone with a rare disease or condition you might want to read more into that. You could of course just ask them about it (depending on your relationship to the person and the person itself I guess) or google it beforehand make them feel understood and not alone. Or google rare disease and/or condition and find something you want to invest a little of your time in. I mean there are a million things you can do to contribute and create awareness. You don't have to do something big to make an impact. And even that you have just read this and may have learned a little something which makes you understand rare diseases and conditions a bit more, is a win.

A disease can make you feel very lonely even with all the love and support from your loved ones because, in the end, no one really wants to be the odd one out. That is why I wanted to start to share a little bit of my story so even if maybe you are the only person that reads this I want to say:

you are not alone!

love Poppy



sources: 
https://en.wikipedia.org/wiki/Rare_disease
https://www.rarediseaseday.org
http://www.alsa.org/

*Disclaimer: I have gathered this information from the various website as shown above and from my own experience. I do not have any medical knowledge as in I am not trained in the medical field. I have taken Rare Disease Day as an inspiration to write this blog. It is just a view of my experiences and to create awareness for rare diseases and conditions. With these provisos, I have written this blog,

Wednesday, 12 February 2020

Poppy Makes... a Valentine's mandala 💕

Hej there,

I have made a new mandala colouring page which you can download for free in PDF format on the colouring pages page. I always love making colouring pages myself it is quite relaxing making them and also giving them some colour. I think for me the colouring is the most relaxing part. Because that is where you don't really have to think about what you are gonna draw just pick some pretty colours and just make it come alive. Well, at least that is how I feel. On the colouring pages page, you can find more Valentines day inspired printables from more colouring pages to cards and name tags. For me, Valentine's day doesn't have to be something big you know. I think it is the little things that matter so if it is a card on which you tell someone what they mean to you or a mandala filled with someone's favourite colours I think those are the things that make something special and makes someone feel special. I hope you feel a little inspired to make something for your Valentine and I wish you a lovely Valentines day.

x Poppy


Friday, 7 February 2020

Valentines day DIY ideas

Hej everyone,

Valentine's day is just a week from now and that is why I wanted to share a couple of my previous free to download printables and Valentine's day appropriate video tutorials I have made over the past few years. For me, Valentine's day is not about the grand expensive gifts it the little things. A note, letter or card telling someone you love, whether it is your one true love, your mom, best friend or someone who just means a lot to you, to tell them why they are special to you. To bake their favourite pie or just something you made yourself especially for them. So that is why I have listed a few of my own favourite DIYs and printable's. I hope to inspire you with these to make that something special for your Valentine.

1. Beauty and the Beast rose



What flower says love more than a rose. But why not make a lasting one, one that never withers. And allthough the rose I took the inspiration from does wither I promise you this one will not. I got inspired by Beauty and the Beast to make a rose looking like the one Beast has. If you click here you can check out the step by step video tutorial on how to make this rose and don't forget to download the free printable rose pattern (click here) to get you started.

2. Oreo cupcakes



This is seriously the easiest Oreo cupcake ever. I make them all the time and people even ask for them and they are done in the blink of an eye. I don't use any type of difficult chocolate cake recipe or a hard to make topping it is actually a simple box cake divided into cupcake liners, melted white chocolate and broken Oreos. And yes that is it! If you don't believe me click here to check out my video on how I made these cupcakes.

3. Valentine's day friendships bracelet


Friendship bracelets are so much fun to make and why not give your best friend a friendship bracelet on Valentine's day because shouldn't we celebrate all those who we love. This friendship bracelet has a heart shape pattern, so whether you are indeed making this for your best friend, your mom, your lover or yourself, this makes a perfect little gift. If you want to watch the step by step video tutorial on how to make these click here.



4. Printable banner

Poppy makes... Valentine's day inspired banner



These are Valentine's day inspired printables. Just click here to open the google drive document and print or save the PDF. If you have trouble making the banner I recommend the Harry Potter-inspired banner video tutorial (click here) in which I will show you step by step how to make a banner.


5. Printable cards

Poppy makes... Valentine's day printable




This printable has 2 cards and a couple of gift tags/labels. You could just print it and use it but, you could also print it and glue it onto a piece of (coloured carton) paper. To make it a bit more durable and to give it an extra pop of colour. This way you can send a card or a gift to someone and let them know you like them. To download the printable in PDF format all you have to do is click here.


And if that all doesn't float your boat or you just can't seem to find the perfect gift why not learn to play the song kiss the girl from the little mermaid. I have learned to play this song about 2,5 years ago and I just love this song. And if you have a crush on someone wouldn't this be so lovely to serenade them with this song. In the video (click here), I will show you as always which strumming pattern I have used, which chords I have used and the words to the song. 


x Poppy

Wednesday, 8 February 2017

Poppy Makes... a Valentines day banner - FREE printable


Hej there! Today I have got a new FREE to download printable waiting for you. It is Valentine's day inspired banner, which I made myself. In less than a week. All you have to do is go to the colouring pages page and click the link to download the banner in PDF format. Have fun!

x Poppy 

Wednesday, 25 January 2017

Poppy Makes... a FREE Valentine's Day Printable

Hej guys! It is just a couple of weeks until Valentine's day. On Valentine's you send the person you like a card without even telling it was you who send it or you can just tell him/her. That is why I made a FREE printable with 2 card and a few gift tags/ labels. Please go to the the colouring pages page so you can download the printable. Please don't forget to also come find me on other social media like YouTube, Twitter, Instagram, Facebook & Pinterest. Have fun!

x Poppy